Finding the words

Arlene, Judy and Mary

Finding the words have never been difficult for my mom until now.  Sometimes when she talks she subsitutes off the wall or different words.  It is kind of cute and the funny thing is that we know what she means.  She will say afterward, "That is not what I meant to say."  She is sad somedays.  I think we are in the valley of sadness.  She said to me today on the way to her house. " I really didn't expect to be going downhill this fast."  She woke up this morning and she was very lucid and alert and I thought well this is a good day to go see her friends at her Sierra Medows apartments.  She was so excited when I told her she was going she could barely contain herself.  She loves her "Golden girls" as my sister in law Robin calls her friends: Betty and Arlene.  

We dropped off the Uhaul truck and I had to pick David up on the way over to her house.  It was so funny!  The moment we arrived at her Apartment housing, people litterally lined up to give her a hug in the lobby.  She was basking in their love and affection for her.   She told me that I could leave her with her friends, so I used this time to get some seeds and stuff for our garden. 

My mom has to have her medication at 4 pm, this is important because, the steriod that she takes helps keep her brain from swelling from the tumors and keeps her from becoming anxious and confused.  It has to be given before 4 pm.  So I drove back to Sierra Meadows and there my mom was in the courtyard and a bench surronded by her friends.  She was tired, but happy, that I was there to take her and her dog princess home. 

She rested and ate dinner with us and after dinner she was walking back to her bedroom with me and and turned to me and said, "I don't think I have much time left."  and started to cry.  I turned to her and said,  "Well momma, that's why were going to make everyday special for you! We are going to make every day count!"   I kissed her on the cheek and gave her a hug.  Olivia was right next to her and she started to cry too.  My mom gave Olivia a big hug and told her she loved her. 

She never really complains that she is in pain.  I have to ask her, what is your pain level?  and then she always replies, "It is in my hips."  "No momma what is your pain, on the scale from 1-10?" and she says, "9"  God bless her!  She never ever complains. A nine!  I think I would be moaning.  I told her tonight to be sure and tell me when she was in pain because it's my job to make sure that we keep her as comfortable and pain free as possible.

So many things have happened...

My mother came back from her trip to Nevada. She had a wonderful time with her sister Ruthie.  I came to see her the day after she returned.  She was very excited to show me all the things she had purchased while she was gone.  I had something very heavy on my heart to tell her.  On her birthday, my home was sold at auction.  We had attended a home preservation workshop the day before my birthday, February 23, 2012 and on that very day someone taped a notice of sale on my door.  The sale date was for my mom's birthday March 13, 2012.  Three people reassured me that this was not in their system and just a formality.  They continued to reassure me on the phone that this was not a true sale.  And on March 11, 2012 they finally told me they were indeed selling my home.  The house I shared with my father, the home we had painstakingly remodeled: the kitchen, dining room and bathroom.   So during the time my mom was gone.  I packed and moved and unpacked and moved.  Geeze we have a lot of stuff.  We have been married 28 years and we are on the verge of horderville! 

I knew that all things would work out fine and never once did I worry about this entire process.  I only worried that my mom would find out before we had a place and this would cause undue stress, on her already frail condition.  We were so blessed!  We found this neat, old, farm house,  just three miles away.  I never cried one time during the whole process.  I knew that God was in control.

I sat on her couch and told her all about what had transpired.  I broke down and cried and told her that I didn't want her to hear this from someone else.  I didn't want to be a disappointment to her.  She re-assured me that I was not a disappointment to her, that she loved me no matter what.  I just sobbed into her arms and then she says," I sure hope the hospice nurse gets here cause I want to go see your new house!" 

I told her that I had dreamed about this house months ago when we were worried that we might not have a home.  I woke up from my dream and told my friend Lynda and my husband all about the dream.  I didn't realize this was the same home in my dream, until I had a Déjà vu moment while moving in on the second day and it took me back, as to how much detail I remembered from my dream.

The hospice nurse finally came and left, and then we loaded up her dog into my car and I drove her out to see the new house.  She loved it!  She said it felt like she had been there before.  She climbed into my bed and took a three hour nap.  I brought her back to her apartment and gave her her pain medication and she went right to bed. 

She had been coming back and forth from her apartment to my house and we decided that she should stay with me because of her brain tumor and probably the pain medication she was very confused.  There is no one to give her medication there at her apartment and there were a few mornings where she was confused and anxious before I arrived.

  Hospice was kind enough to deliver a hospital bed and bed side table to my home.  Her bedroom is right next to ours and her windows overlook the blooming Camila's in our yard.  Bright pink and red can be seen through the slats in her window blinds.  Her door is a glass french door so even when it is shut I can check on her. 

Sue, Judy and Julie

Louie and Karen and Judy



Kelley and Grace, Joseph and Judy

I have had lots of special angel friends of my moms who have been an enormous help.  I have had to move a little at a time all the rest of our stuff over and her friends Arlene and Betty were gracious enough to offer to come over on Monday and sit with her while I went off to move and pack my stuff.  Tuesday her dear friend; Karen, came all the way from Woodlake, to stay with my mom,  Wednesday her friend Sue came over and sat with her and this was her worse day she slept the entire day.  I was worried about her.   Thursday her friend Karen came back over to stay with her again and Friday her friend Kelley came over and stayed with her.  I am glad to say that I am done moving!  and I am beyond grateful for each one of these ladies who gave up their time to spend the day at my home with my mom. 

Aunt Ruthie's house...

My mom called me today from Nevada, it was nice to hear her voice.  I had decided even though I wanted to talk to her that I would let her call me.  She called me three times yesterday, and we chatted.  She said that she was resting most of the day.  I asked her if she was using her oxygen and she said yes.  I told her about Samantha's post on her Facebook the other day and how when I saw it I cried.  I read it to her and and her voice started to quiver and she said, "Well wasn't that nice!"  

Samantha Gill 

Grandma I Pray for you, i love you and always will.  Please if you do leave this earth,  I want you to know I love you so much and I know you're strong.   I just hope that you can give me the strength to be strong. I know I'm not and i need to work on that,  but I cannot lose you without saying,  I LOVE YOU!  When you get to heaven can you tell Amanda and Grandpa that I love them and hope to seee them soon.???  I love you so much grandma!  Stay strong and I will find the strength to stand beside you ♥ ♥ ♥ ♥ ♥ 

Aunt Ruthie

 As much as I dreaded her leaving for Nevada I have a peace about her making the trip to see her sister.  She said they laid on the bed together and just talked about things.  My Aunt Ruthie has always been such a dear, sweet person.   She has such a tender heart.  She was just a teenager when I was born and I have always loved her.  Aunt Ruthie was my matron of honor in my wedding and we named our first daughter, Amanda Ruthann, after her great aunt.  Aunt Ruthie is one of those rare people, who everyone just loves!  

The Goldsmith Family
Norman, Jo, Judy, Ruthie and Norma June

One of my first memories of Aunt Ruthie was when my brother Michael and I were very little and we were sick with chicken pox. now, I don't know if she gave us chicken pox or we gave her the chicken pox.  I just know we were sick about the same time with it.   This also coincided with the disappearance of my brother's  turtle and there was a funky odor in our room.  We looked and looked for his turtle and finally found it's decaying and stinky remains under our bunk beds.  Ugh!  You know I can still remember the stench!  I also have a pox mark in my forehead as a souvenir from the chickenpox. 


My mom called again around 11 PM just to talk.  It was nice to hear her voice again before I went off to bed.  The girls had a little neighbor girl, Jena spend the night. All three girls were playing a game of charades when the phone rang, so I had to ask them to leave the dining room so I could hear my mom on the phone.   We were both tired, she told me she loved me and said she was headed back to sleep.  I got the girls to bed at almost midnight and fell asleep almost immediately after climbing into bed and laying my head on the pillow. 

Mom is in Nevada

I got up early to make a few phone calls and get my home straightened up and then left with Olivia to my moms house.  We stopped over at the donut store and bought her two donuts. On the way over, the respiratory therapist, called and said, he had her portable oxygen machine.  He had tried to contact her but she wasn't answering the phone.  I told him I was en route and I would call him back and confirm that she was home.   She was in the courtyard with her friends visiting.  I called the respiratory therapist and he said he would be arriving shortly.

I walked my mom back to her apartment. where all of her bags were packed and ready for Ruthie and Tim to pick them up.  She was a little anxious but not too bad.  She had lots of small things to do before she left.  We read her bible and she ate her donut as she waited for the the respiratory therapist to came and demonstrate her machine.  It is convenient, the size of a medium handbag and a strap that goes around her shoulder.  It operates on battery or can be plugged into the cigarette lighter.  That was an answer to prayer, because her tanks and the other machine would have been too bulky to carry back to Nevada. 

We got a chance to visit a little bit while she was packing and I told her, "You need to promise me that you aren't going to die in Nevada"   she said, "Well I will try not to, but I can't make any promises."  We both laughed! It's good to just laugh sometimes, when you're talking about serious things, it seems to ease the tension.  

Aunt Ruthie and Tim arrived and I briefed her on how to dispense her oral medication and how to use the oxygen machine, while Tim loaded up my moms bags.  Her good friends Arlene and Betty stopped in to say goodbye.  Betty had big tears rolling down her cheeks.  Olivia and I hugged and kissed my mom goodbye.  She had to stop at the hospice office to fill out paperwork and they left around three to go back to Nevada.  They were in a hurry because a storm was heading that way and snow on the mountains could make their passage treacherous.

Preparing for her trip...

My mom has been making plans to go see my Aunt Ruthie in Nevada.  Since all the birthday activities, she has declined in health.   She was so exhausted on her birthday it really scared me. My Mom said it scared her too.  I went over to see her today and half expected to find her still in bed and she was perky, still wheezing but a lot better then the day before.

 We waited for the Hospice nurse to come.  She was anxious, I had to give her, the "chill out" medication. (lorazapam) It didn't seem to help  She had all of her clothes all over her bed and in the orderly stages of packing for her trip.   Kelley Hannah  Joslin came over during her lunch hour and she helped her pick out her jewelry and visited for a while.  Kelley is such a sweet girl!  Very thoughtful and loving toward my mom.
Kelley had to rush off and my mom called out to her, "I love you Kelley, you should have been my daughter"  and Kelley smiled real big and replied, "If I had been, we probably wouldn't have been the close friends we were."

Judy and Kelley in the late 80's early 90's 

She is still wheezing very loudly and she was tired, so I suggested that she sit down and put her oxygen on.  She was sitting with her head leaned back on the couch cushion  and eyes closed when the nurse came.   After listening to her lungs and a quick examination.   The nurse felt that she should postpone her trip until we had the time to set hospice up for her in Nevada., so they could follow her care there.  I asked the nurse if we could order a handheld oxygen machine and she said she would look into it.  She made a phone call and the person on the other end, told her that they were out, but she could be evaluated by a respiratory therapist and possibly get one tomorrow.

Kelley Hannah Joslin and Judy  2012

  She is planning on being gone for the whole next week and return Sunday or Monday. March 15-26th.  She was adamant about leaving, she knows that her health, won't hold out forever and she wanted to make this trip while she is healthy enough to enjoy it.

While the nurse was there she told me that she wanted to take her dog to Petsmart to get her groomed before she left: because her dogs claws are too long and her dog is in pain.  I made the appointment while the nurse was there.

We dropped off Princess, her dog, and went to Applebee's for a late lunch.  I am not sure if it was just the excitement of the trip or the brain tumor, but there were a few times I felt she was just not quite herself.  We picked her dog up and I drove her home.  Once we got into her apartment, she was pacing like a lioness on the prowl.  She was anxious to get outside and sit on her benches in the courtyard.  She was really wheezing, so I told her she needed to sit with the oxygen hooked up for a few minutes and let me get her medication for her.

She left shortly afterward for the benches and I was putting her medication away and tiding up her house.  I met her out at the bench with a cup of tea, hoping this would calm her.  She drank the tea and we visited.  I contacted the Hospice nurse who was on call, to make sure I could give her another dose of her "chill out" medication.  The Nurse asked when the last dose was given, she told me that we could give her another dose.  When I got off the phone with her and my mom finally decided to settle down and climb in bed she didn't need another dose after all.  She ate some chocolate cheese cake, her friend had sent her for her birthday.  I took her dish and fork and washed it up in the sink as she drifted off to sleep.   I left her apartment and headed home.

Birthday Day.

Judy in the 4th grade

Today is my mother's birthday and she turned 68, we had planned on my birthday; to go out to dinner for my moms birthday.  We have been talking about it all week she wanted to go to Fugazzis and eat an early dinner.  We made plans for 3 PM.  I called ahead and made reservations for a quiet table.  I received a call from my mom at 2 o'clock sometime and she told me to take my time because her bestie Karen and her girls were coming over for a visit.

I hung around the house a little past three and decided that I would return some merchandise to Home Depot. I figured it would use up some time and maybe she would be ready to go when I got there.  I arrived and found her surrounded by her friends  and Jennifer, my mom used to babysit for her family when Jennifer was a little girl.  After everyone left she looked exhausted.

I suggested that we hook up her oxygen and she said she was so tired and it felt "weird" to be this tired.  She reclined her chair and just laid there with her eyes closed.  I continued to talk to her.  She told me that she was still going to go with me to dinner, maybe she needed to rest before we left.  I told her to just rest and decided to kick back on her couch and take a nap with her.  We just got comfortable and her friends came in to check on her.  She told them that she was just, so tired today.

LaDon and Judy 

I told her, "Momma don't worry! We don't have to go to dinner today.  We can just stay here and eat your left overs.  You don't want to drag yourself out when you aren't feeling well."  She was so relieved.  I just know she would have pushed herself because she wanted to please me.

I made us both a salad and after she ate the salad, she was full.  I am very worried now.  I was hoping for a lot more time, where she was feeling good and now she is tired and she has a very loud wheeze.  I encouraged her to go to bed and told her I would sit and rub her feet.  (She loves to have her feet rubbed and I use her lotion and her feet are so soft afterward.)  I just sat and rubbed her feet and we talked.  She told me that she misses me when I am not there and then she said, "I feel like crying when I say this. so I won't say that I miss you."  Tears just flow from my eyes and I started crying too.  I cannot believe how tired she was and she still lifted up out of the bed and held me and tenderly kiss my head.  We broke into a chorus of "Blessed Assurance" My mom knows all the words I sang along with her and hummed through the song.  She said to me, "You know when I was younger, I had a much better voice,"  We both started to giggle.

I called my Aunt Ruthie and she wanted to know all about our dinner out.  I told her that we didn't go because my mom's health.  She said, "Doni that makes me want to cry."  I sighed and told her, "I know,"  and went on to tell her that, I am concerned she might not be up to making her trip to Nevada, with her this weekend.  I explained to her all the symptoms mom had.  I told her that the hospice nurse is coming tomorrow and we would have her take a look at her and give us her opinion of whether or not she could travel.

Surprise, Surprise, Surprise...

When you say it three times together, you can't help but to think of Gomer Pyle; this was his trademark saying and it makes me laugh.    Today my mom's friends decided to throw her and Lori Trowbridge a surprise party. It was all planned out, I came a little early to drop off the balloons and my salad for the pot luck and visited with my mom.    I had to run and pay bills and told her I would come back later.  My mom called me to tell me to come back because there was a meeting to discuss her wishes and formally put them on paper. Her director Lori was there and the social worker Claire, Kellie Joslin and I.

Judy and Betty 

When I returned, everyone was waiting for her in the community room and all I had to do is get her there.  Now that sounds easy right?  Not this day, it was like herding cats, she didn't want to walk through the laundry room to get to the party.  She wanted to walk out the front door and all the way around the building and sit on the benches in the back of the courtyard.  A friend came up and started to chat with her and I walked back to the party without her.  I explained my plight to her friend Betty; who is kind of a take charge kind of gal. She has a certain tone to her voice. A tone  that you just want to do what she says and nobody will get hurt.

Judy and Lori 

She brought her over to the community room and everyone yelled surprise!!  She was too!  Her friend Betty and Arlene had decorated the room and bought her a cake, with Lori  and mom's pictures on the top.  It was a lot of fun!  I love pot lucks because you never know what's going to be at the party, but most the time its delicious!    My mom was so excited and happy.  I know this just made her day!  I had to leave because our older daughter Samantha was in a play and my husband volunteered to do the concession stand; which meant that I was his helper.  So I kissed my mom goodbye and left with my husband.

I kept thinking about my mom the whole entire night and got home and found I had a message on my phone.  It was my mom, she had been thinking about me, she left me the sweetest voice mail, it made me cry.  I called her back and left her a message.she called at 10:30 PM and we talked for a little bit.  I love my mom.