The bed is now empty...

My sister-in-law Robin, and my aunt Ruthie were sitting up with my mom when I woke up and I came and sat with them.  We watched as my mother struggled to breathe.  I had set her medication up to be administered every two hours but as we gave her the next dose she seemed to be in discomfort and anxious for at least 30 minutes.  I contacted the nurse on call and asked that we increase her medication to every hour.  It seemed to make a big difference.  Robin had already started setting her alarm on her phone to go off every two hours so we set her phone to alarm every hour. 

As we watched her in the darkness, I said: "It looks like she is crying."    She said just a few profound sentences while struggling to breathe.  She said, "I am dying"  and "I have been crying"    At some point of our sleep deprived evening, I decided to try and figure out what the dosage of her medication was in miligrams for the 24 hour period.  I thought my aunt, who is smart enough to be a CPA could do this.   We laughed so hard because the numbers didn't seem to add up, and then Ruthie said Norma would be able to figure it out.  We laughed about waking her up to figure out what my mothers daily dosage would be.  I think it was more funny because we were so tired. 

I contacted the hospice office because my mom would run out of medication and she needed it refilled.  The hospice nurse was very rude to me on the phone because I was explaining to her the dosage and said a syringe and a half instead of a dose and a half.  I had to pass the phone to Norma who corrected me and told them we were giving her .75 ml of the medication.  I asked if she was coming to see my mom and she told me she would if she had time.  I was irked by this. 

I layed down for a nap and just dozed off to sleep when Kathy Keiser arrived.  Aunt Nornie came and woke me up.  I stood there while she was assesing my mom and finally she said to me, "Do you have anything you want to say?"  and I very calmly let her know what I felt. 

1. We had a situation in April where I needed the hospice nurse to come and visit and was told the oncall nurse was coming three times on the phone.  We never received a visit or a call that she wasn't coming.  When Kathy came the following day she said there was a note in the computer that I called and cancelled the request. 
2. The LVN announcing that my mom was going to expire.  I did say that I felt Melissa had the makings for a wonderful nurse but she should never announce this to the family.  Melissa also said she would send out a greif counselor and someone else and NOBODY showed up. 
3. the social worker came out and told my mom she would return on a specific date and bring her lunch and they would have a chat.  She not only didn't show up but when I called to see if she was coming she told me she would call me back and NEVER DID!  The social worker has blue hair and nails that are so encrusted with glitter and crap, she could flag down aircraft from the sky.  I think she should be held to a more professional appearance standard.
4. The chaplin was requsted to bring a daily bread to my mom and when I told Kathy about it, he finally came and brought the book.  Kathy had left a message and said she'd given him the book to give to us that day.  He came to our home and announced that he'd been carrying this around in his car for a while.  I cannot stand being lied to!!
5. I told her I was disappointed with hospice because I thought our mutal goal was to keep my mother comfortable and out of pain.  I told her that It has been a horrible experience. 
6. I told her I didn't appreciate the way she talks to me on the phone.

you know they hadn't even ordered her medication until the nurse came that day.  We also discovered that after she left my mom would only have enough medication until 4:30 in the AM.   We had to contact the on call Hospice nurse Sandy and she went to the pharmacy after it closed and brought us some more medication.   We called her out again before midnight because we were having a hard time with my mother's breathing she had lots of phlem in her throat and needed to be suctioned.  The Hospice nurse ordered her a suction machine.  The hospice nurse also called out the chaplin from Fresno to come and sit with us for a while. 

My husband who was sound asleep heard the chaplin drive into the other driveway and grabbed his shotgun and heading out the door towards his car.  My sister in law came running into my mom's room and said, "I don't know what's going on but David has a shotgun and is heading out the door!!" 
I ran after him and caught up with him as he greeted the chaplin with the gun in his hand.  The Chaplin was pretty shaken up too!  This is still pretty funny when I think about it. 

The chaplin stayed with us until almost 2 AM and read the bible and prayed.  He shared with us his wife had just passed away eight months ago.  We said goodbye to the chaplin and Robin, Jake and I all sat around mom's bed.  At 3:15 AM Robin asked her son Jake if he planned to stay up with us and he said he did.  We decided it was time for another cup of coffee so we left the room for coffee and Jake stayed behind to read the bible and pray with her.  He had just finished his prayer when we came back into the room and she had gone to be with the Lord.  

the empty bed...

We contacted the hospice nurse and she came back to the house to prounounce time of death at 2:30 AM May 10th 2012.   We called all the family and I woke up my aunt Norma who was asleep to tell her.  We all sat around until the funeral home came to pick up my mom's body.  I went in with the nurse and we cleaned and changed my mother.  I felt so sad but I couldn't cry.  I felt she was rejoicing in heaven with Jesus and all of her friends.   I had cried alot before this day.  I am happy for my mother because her suffering is finally over. 

Your mother is about to expire...

OK, that sounds dramatic right?  Well this is what happened.   My mom's friend Karen Luisi, my Aunt Nornie, her daughter-in-law Ida, my niece Monica were all at my house when the  hospice nurse came. 
My mom was resting on the big comfy chair in the living room and the hospice nurse says, "Your mother is about to expire let's get her to the bed, where we can make her comfortable." 

So the next thing you know, everyone including me, is crying and we are in a hurry because we have just been told by the hospice nurse that her death is imminent.  We get her positioned in bed and the hospice nurse leaves and my aunt who is a nurse says, "Well, isn't it nice she gets everyone all riled up and doesn't take another blood pressure, while she is laying down, and leaves!"

My Aunt Ruthie is driving from Nevada with her husband and they are in Kingsburg when I tell her to hurry, after all my mother is expiring right?  She said they got to the corner near my home and she wanted her husband to let her out of the car, so she could run through the field to my house.  I am glad that her husband Tim, calmed her down and convinced her to stay in the car until they pulled up in the driveway. 

My mom continued to slip deeper into sleep.  We could wake her, but she was not responding verbally or if she did it was small words and short sentences.  My sister-in-law Robin, Aunt Ruthie decided they would sit up with my mom into the evening.  I tried to get some rest but slept deep and hard, for only a short time. 

My mom's friend Diane...

Monday my mom's dear friend; Diane Birk, came all the way from Los Angeles to say a final goodbye to her.  She had already come to see her a few days ago and she was leaving for Seattle when she received my phone call.  She had to rent a car and drive back down.  She was so kind to offer to stay up with her so the family could sleep.  My Aunt Norma and her husband Gary and their daughter-in-law Ida and grandson Antonio arrived later that night.  My Aunt was distraught because she thought my mother had suffered a stroke.  She was just in a deeper sleep and could only say just a few words by this time. 

Diane and Judy at her suprise birthday party 3-13-2004

We got everyone settled in for the night and even though I should have slept, I just couldn't.  I sat up and talked with Diane, while we were chatting a huge bug crawled across my chest and I pulled my shirt and launched the bug into the air while saying loudly, a very bad word!  I immediately stomped on the bug and then laughed and apologized for my language.  It is quite funny to think about it even now.  Diane was so sweet she just shared a memory of when her daughter came home from preschool and shared a bad word with her.

Diane sent this to me in an email and this is shared with her permission.

"Hello family and friends,

I was able to visit with my dear friend, Judy Barnett, at the end of February when she was diagnosed with terminal cancer. I made another trip to California and was able to visit her on May 1st and 2nd. She was weak but was doing well. I was blessed to help her as she dictated a letter to me saying farewell to her family and friends.

On Monday got a call that Judy only had a short while to live. I quickly returned to Visalia and was privileged to stay up all night watching over her. On Tuesday I spent much of the day with her and her family. Before leaving that evening I was able to hold her carefully and pray over her. I reminded her to put in a good word for me with God -- we'd joked about it the previous week and told her that her family was okay and she could go home to God. Although Judy is blind - she opened her eyes and looked right at me. I know she heard me and knows how much I loved her. She passed away this morning at 2:30am.

Judy had a profound affect on my life. She was a simple and sweet lady. She babysat Arianna and Alyssa when they were little and loved them and considered them her girls even recently. After I moved to Seattle we talked often by phone and I always visited her when I was in Visalia to see my family. Judy was a sincere and loving Christian woman who loved God. Judy, her sister Ruthie, another friend, Sue, and I had a long-standing weekly Bible study. We prayed, laughed till our stomachs ached, cried and grew into "family"! You could share your darkest secrets with Judy and know it would go no further. She was a real prayer and lifted you up to God through her day -- she seemed to know when you needed prayer before you even told her. She raised birds - even after losing her eyesight -- just with a gentle touch she cared for the tiny birds without seeing them. She was deeply loved by so many -- everyone feeling they were kin, not just friends. What a blessing she was to so very many!

Oh what a special blessing Judy was in my life. I will miss her so much, but I'm happy for her as she is now where she most wanted to be -- the the arms of her saviour!!

Diane "

Walking in death's shadow

We have finally come to this place where my mom is asleep and in another world most of the day and night.  She looks at peace and as long as we have her sitting in a chair, she feels like she can breathe.  She is only giving me short yes or no answers to questions like, "Mom do you need your blanket on your feet?"  I am going to stay by herside all day today. 

As I am typing this I hear the radio; my sweet husband remembered to put the radio on the oldies station, so my mom could enjoy music playing softly in the background.  I am touched by his acts of kindness toward my mom.  He has been so good to get up in the middle of the night, when I needed his assistance.  He gave my mom a hug last night and you could feel the love in the room.  They have never been super huggy - squeezie and they have for the most part had a love / hate relationship all these years.  My mom told me a few months ago she felt like she resented him because he took her daughter away.   She said sometimes that is the way it felt but also said, that she loved him too.  The minute we got married we were sent to live far away because of my husband's job in the Navy. 

Her dog princess has been totally by her side, she knows what's happening.  I texted and called everyone yesterday to let them know that my mother's time here on earth is coming to an end and soon she will be healed for heaven.  Her good friend Kelley Joslin came over she had been on at a conference of Dental hygienists in Anaheim and was traveling home when she got my message.   My good friend Kellie Hawker came and picked up the girls, who have been pretty good for the most part but are stressed out, and whisked them away from the reality that their last grandparent is dying.   My mom's friend Arlene came over and she was so emotional, she had to take a moment to compose herself before she sat down with my mom.  Our son Robby and his wife came over and they sat with grandma for a while.

I called my mom's two sisters and gave them an update on my mom and while I was on the phone with my Aunt Ruthie. I looked up and saw this dark cloud of bees right above my head moving fast.  I said something like, "I have got to go there are bee's coming toward me!"    I ran into the house and the bees swarmed our old water tower. 

I am calling hospice this AM and going to see if the nurse can come out today.  My prayer for my mother is she is comforted and out of pain today.

Tender moments...

our youngest Brendon saying goodbye to his grandmother

Those quiet times when you say goodbye.  I have been privileged to watch people come and say goodbye to my mom for the last two days.  She is now unresponsive for the most part.  Her dog Princess keeps a quiet vigil on her master by laying faithfully at her side.   I am sad because I thought there would be more time to plan her funeral and ensure any of her wishes were fulfilled. 

My mother is one of those rare people who attract very loyal and dear friends.  She is such a sweet person!  I have been so blessed to really get to see what a beautiful person she is.  We spent too much of our life being too much alike and really not liking to look into that mirror at we saw in each other.  Which was in essence eachother and our simularities.

 My dad died, suddenly of a stroke, 18 months ago.  my mom tearfully told me how much she loved me and how sorry she was about my dad's imminent  passing. The doctor had just told her, while I was in the bathroom, that my dad had a massive stroke and his brain was engulfed in blood.  We were still in the Emergency room and I remember her hugging me and saying, "I LOVE YOU" and I said, "How could you love me, you don't even like me!"  I remember her hugging me tighter and saying, "I do love you!"  We just sobbed in each other's arms.

 I prayed and asked God to help us figure out our relationship and give us the time to do this before she died, because I didn't want there to be any hard feelings for me to deal with after she left this world.  I seriously didn't want her to have cancer that metathesized into her brain, but I am so very fortunate that we healed our relationship and forgave past hurts, before she came to the place where she isn't communicating.  I am thankful that I was able to care for her and show her the love she showed me when I was a little girl.   I reassured her that she was a great mom! 



It won't be long before the woman God gave to be my momma, will be making her final journey to heaven.  I think she held on for her friend Diane Birk to come see her.  I think she needed to write her thoughts in a thank you note and Diane was kind enough to do this.   I just read something on the Internet about the five things you must do before you die and she did all of them. 

The five tasks of dying

Ask for forgiveness

offer forgiveness

Offer heartfelt thanks

Offer Sentiments of Love

Say goodbye

My heart hurts because I know, I will soon never have her touch or see her smile, until I make my journey to be with her in Heaven.  I will never be able to call another woman Momma here on this earth; but soon, she will be reunited with her momma in heaven just in time for Mother's day.  

http://dying.about.com/od/thedyingprocess/a/5_tasks_dying.htm * taken from this website

I will cast all my cares upon him...

This song has resonated in my mind several times these last few weeks.  I am caught up in the daily care of my mother and all the responsibilities of being a mom to my children as well.  I am sad today because last night was probably the roughest night we've had so far.  My mom woke up twice and had to have complete bedding and clothing changes.  She was so sweet she leaned over to me and whispered "I think I might have wet myself" and then started to cry.  I just hugged her and told it would be OK we were going to change her and make her fresh and lovely. 

I have been helping her with her showers and it seems that some part of my childhood flashes in my mind of my sweet mother, lovingly bathing and caring for me; it has now come full circle because I am bathing  and changing her.  I know that this must be a very humbling thing and I try really hard to keep her laughing and her mind off the fact that her daughter has to help her.  

Her dog Princess has been a very close companion.  She jumps onto her bed before we are ready for my mom to be positioned and I am constantly picking her dog up and placing her in her bed on the floor until we get my mom comfortable.  She cannot sleep laying flat because she feels claustrophobic, so I play with the controls to lift her head and feet in the proper position. 

I am very tired, and I am so very grateful for the time that we share because it is very precious.  She loves for me to read her bible to her and her daily bread, we listen to on the computer while she is eating breakfast.  My mom told me to read her a chapter in Proverbs everyday that corresponds with the days date, so for example today we will read Proverbs 5, because today is May 5th.  (What a good idea!)

This afternoon my mom said to me, "I hope I am worthy enough to go to heaven,"  as she was getting ready to take a nap, and I told her: "Mom you are not only worthy!   When you get to heaven, you are going to be getting some beautiful crowns for all the things you have done here."  We talked about all the people she would see there!  My precious five year old daughter Amanda and our little baby Kevin that died in utero and was born still.   My grandparents. my father. My brother, my baby cousin Charlene, her brother who was born still... and lots more. 

My mom's feet are beginning to swell and she is very tired.  We have one good day where she is awake and alert and two very tired days after that.  Her toes and fingers have begun to take on a dusky blue color and her chest is swollen at the midpoint right above her sternum, I suspect that it is the tumor that is right below there. She has involuntary tremors and her body shakes.  I feel like time is now such a precious commodity. 

I am thankful for my mother!   I am casting all of my cares at the feet of Jesus who will carry us through this time.

A message from Judy

This is a note my mom had her friend Diane help her write today I thought I would share it with you. 

Dear Family and Friends,

My friend Diane, from Washington is here today and is transcribing this letter for me.
First I want to wish my dear Sister, Ruthie, happy birthday on this very day.

Judy and Diane

I want to thank all of you for all your love and prayers. I have felt them every day. I thank your spouses for letting each of you to be with me in thought and in person as my dear best friends. They say you often have only five best friends to list when you pass away, but I have so many more. My mind isn‘t as sharp as I wish it were, so if your name isn‘t listed please know it was unintentional and you are loved even if you‘re not specifically named. I am blessed to have these best friends: Robin, Norma June, Ruthie, Monica and all my grand-kids, LaDon, Eric, Arlene, Betty, Lori Trowbridge, Karen & Louie Luisi, Sharon, Pat and Ken, Marie, Sue, all the Joslin, Sanchez, and Hannah family members, My brother Ric and his family, and everyone else at the Sierra Meadows complex
Thank you for the phone calls, visits, prayers, taking me to doctors, letters, messages and get well wishes and thoughts.
Today I’m feeling pretty good. I’m staying with my daughter, LaDon, who has been taking absolutely wonderful care of me. She has been working with the doctors and hospice and has my medications working well for my pain. LaDon is right there whenever I need her. I so appreciate her love and support now when I need it the most.
The hospice caretakers are wonderful. My nurse Kathy Keiser and LVN Melissa. They show love and compassion and are so dependable. I can’t thank them enough for their care!
Thank you for being my friend, thank you for loving me. And I love and cherish each one of you!!
　
　

Judy (Ju-Ju) Barnett